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The Spider Who Never Gave Up
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Never Give Up On Your Hopes or Your Dreams
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Travis Health Updates
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Next check up is Tuesday, March 25th Click here to send Travis a message
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January 6, 2008
Travis was at 74% so they let him go home yesterday. He is still on IV meds until the 14th. He will go back for a check up that day and determine if he needs another week of meds. He is very happy to be home!
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December 18, 2007 Travis was admitted today to Rainbow Babies and Childrens Hospital in Cleveland because his lung functions are at 50%. He feels ok and knows that he will get better, but is a little bummed because he will be in over the holidays for a round of IV meds. This will be the first time he will spend Christmas and possibly New Years in the hospital. It works out well because he is on school break right now and will not miss any school. We are making the best of the situation. We have decorated his room fiberoptic tree, a self-made fireplace and all. Other than the medical setting, it is very festive in his room.
If you would like to send Travis a greeting, his email address is t43first@aol.com
his phone is 740-336-4311 the direct number to his hospital room is 216-844-4128
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October 22, 2007
Travis has gained another 5 lbs. His lung functions are are 68%. We are not sure if this is his CF or just because he is fighting a "common cold". We discussed doing IV meds, but we don't want him to become immune to this new IV med. So, he is trying a 3 week oral med at home.
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August 20, 2007
We are very excited! His lung functions are back at 86%. And he has gained some weight back. We are so happy. Travis was released to go home today, without IV. This is the best lung functions he has had in years.
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August 12, 2007
Travis was admitted to Children's Hospital in Cleveland on Wed. the 8th. His lung functions were 67%, but his x-ray showed that the right lung had lots of infection. He has also lost about 15 lbs. So the doctor felt he needed another 3 weeks of IV meds. He is due for a lung function test again on Wed. the 15th. ******************************************************
June 22, 2007 Travis is home. He made it through surgery and his 3 weeks of IV meds without complication. We will not know his lastest lung functions until he goes back for a check up on July 6th. ******************************************************
June 8, 2007 After 1 week on IV meds, his lung functions are back up to 67%. He will still be in the hospital to finish the 3 weeks of meds. He is scheduled for a Nissen fundoplication to help stop his acid reflux on Tuesday June 12th.
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June 1, 2007
Travis was admitted on May 31st for a 3 week round of IV meds. His lung functions on the 31st were 40%. He is feeling good, just increased cough and feeling more tired.
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March 7, 2007 Travis had a check up today. His lung functions are at 71%. Travis has a bit of a cold right now and he took what he called a "medication vacation" for a couple of weeks. He knows it was not the smartest thing, but he felt he needed a break. He has been advised that next time he decides he needs a vacation, he should go to the beach and take his meds with him. :) He will have to go back to Cinn. for a broncoscopy in April. Hopefully his lung functions will be back up in the 80's by then.
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December 28, 2006 Travis had a check up today. We are THRILLED to say that his lung functions not only maintained after he came off the IV meds, but he is now at 81%. He has not been in the 80%'s since Sept. 2005. He has also gained a couple more lbs. It appears that this new IV med actually worked. He will return to Cinn. for a check up the end of March.
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December 8, 2006 Travis finished his 3 weeks of IV meds on Tuesday. He was very happy to be home again. He was back at school on Thursday and back to his normal routine. He feels ok, but his lung functions are still at 76%. That is good news. Of course we would like to see him in the 80's again, but considering he hasn't been in the upper 70's for a long time, we will take it. He will return to Cleveland hospital for a check up and to make sure he has maintained his lung functions. on Happy Hanukkah, Merry Christmas and a Very Happy New Year to all!
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November 14, 2006 On Oct. 30th, we went to Cleveland CF clinic for a 2nd opinion. Although his lung functions are back up, it was the recommendation of the doctor that we try a IV med that they have been successful with in Cleveland. He explained that the meds that Travis has been doing seem to only be containing the infection while on IV meds not breaking it up and out. This might be why he has been on such a roller coaster with his lung functions and back in the hospital so often. So today, Travis will be admitted to Cleveland Rainbow Babies and Children's Hospital for a minimum of 2 weeks. Yes, he will be in the hospital for Thanksgiving , but we feel the benefits of trying this med, out weigh the risk at this point.
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October 12, 2006 Travis had his check up today and he was admitted to the hospital. Although, he says he feels pretty good, his lung functions are only at 57% and when he coughed there was blood in his sputum. The doctors are concerned that the infection in his lungs might be the cause of the blood. So he is on another round of iv meds.
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August 27, 2006
Travis stayed 2 weeks in the hospital on IV meds. After the first week, his lung functions improved to 64%. When checked after another week of meds, he was still at 64%. Because there was no improvement this week, Travis decided to remove the picc line and stop the meds. He figured the meds had run their course. He gained another 5 lbs. He was able to go home on the 17th. We are still hoping to get him back up in the 80%. He is still finishing his on-line school for the year, but he has also decided to return to Frontier High School for his sophmore year. He started back to High School on the 22nd.
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August 3,2006
Travis had a follow up/check up today.
The good news is that he has gained 5 lbs and has grown 2 inches since May. They also said that he did not culture the myco-bacterium simiae in his last culture.
The not so good news is that his lung functions were down to 56%, so they admitted him for another round of IV meds. They took another culture to re-check for the myco. He will have to do 2 -3 weeks of IV meds again. The doctors will re-evaluate him the end of next week to see if he can go home and finish the IV meds or if they think he should stay another week.
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June 27, 2006
Travis had the picc line removed about 10 days after he got home. The doctors are still researching to find a medicine to fight the mycobacteria simia. In Travis's opinion, he doesn't have time to be sick. He is feeling good and keeping active this summer. He has been out doing presentations and is working on his 2nd fundraiser for his foundation, The Travis Flores Children's Foundation (www.tfcf.org).
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May 17th, 2006
Travis is finally home.
His lungs functions were at 69%, but his broncoscopy showed improvement.
His lungs looked a little clearer. He still has his picc line in so he can do IV meds,
if needed, when they get his results back from the broncoscopy.
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May 10th, 2006
Travis is still in the hospital on IV meds. When he was first admitted, his lung functions dropped to 50%. As of Monday the 8th he was back up to 72%. On Tuesday the 16th, the doctors plan to do another bronscoscopy and then Travis will go home. His weight is up to almost 100 lbs.
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April 13, 2006
Travis had a check up and his lung functions were at 60%. One of the 2 new bacteria's is a myco bacterium. They plan to admit Travis on the 25th for a "clean out" and to try and treat these new bacterias.
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Feb. 3, 2006
Travis is back up at 78% lung functions and they did a broncoscopy today. This is when they take a camera down into his lungs to take a look around and collect some samples. His lungs looked pretty goopy, but they were able to collect some samples and found that Travis has 2 new bacteria's. It will take a couple of weeks to culture and test these new bacteria's with medications.
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December 8, 2005
Travis was home for Thanksgiving, but continued on IV meds at home. Although we had him on IV meds this long, his lung functions at still down. When he started his IV meds he was at 68%. Today he is at 70%. He usually does much better after a dose of IV meds. This is not a good improvement, but at least he did not get worse.
We stopped the IV meds because they do not seem to be working and will return for a check up in Jan.
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November 14, 2005
Travis was admitted to the hospital today for 3-4 weeks of IV meds. We think he will be in the hospital about 10 days. We hope to be home for Thanksgiving.
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November 10, 2005
He gained 2 more lbs.(now 95 lbs.) BUT, his lung functions were only up to 68%. We were trying to get him back in the upper 70's or 80's without IV meds. He did get better, but he caught another cold that got the best of him.
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October 26, 2005
Travis got better and we stopped the IV meds. But.....he has another cold.
So, we have good and bad news.
He has gained another 3 lbs. (94 lbs now), but his lung functions were at 67%.
We will give him 2 weeks to battle it and get better.
Then we will return to the hospital for a check up.
If his lung functions have improved tremendously and he sounds good, we will let him go on his merry little way. If he has not improved back to around 80%, we will have to consider another round of IV meds.
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September 14, 2005
Travis has done a great job of getting his lung functions & weight back up.
His lung functions are back up to 81% and he gained 3 lbs. now at 91 lbs.
He still doesn't sound so good and we are coming into the flu season. So......we decided that if we added iv meds to his battle there is a good chance he could improve that much more and maybe be that much stronger through the winter. It was a very tough decision to make. He is doing a 2 week dose and will be in the hospital until Monday. He has been off IV meds for 9 months. With the booster dose of meds and him doing a great job of taking care of himself, maybe he will be good to go more than a year without iv meds.
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September 7th, 2005
Travis' check up did not go as well as we wanted,
but it also did not go as bad as we expected.
He caught a cold over the weekend and has been battling to get better.
His lung functions were down to 69/70% and he lost 2lbs. We chose to take 1 week of increased treatments at home to try and get better without the use of IV meds. If he is not back up above 80% when we return for his check up next Wed., he will have to be admitted and put on IV meds. Let's pray he gets better.
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August 3rd, 2005
Travis had a really good check up today.
His lung functions were back up to 82% and he gained 2 1/2 lbs. He will do a follow up check-up in about 5 weeks to make sure that he maintains this level or gets better.
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July 7, 2005
Travis' check up today was not good.
His lung functions were down to 67% and he has lost 2 lbs.
Our plan is to increase his treatments and medicines for 3 weeks.
Then return for a check up on Aug. 1st.
If his lung functions and weight are not back up, we will have to put him in the hospital and do IV medicines.
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April 20, 2005
Travis had another GREAT check up!
His lung functions are still at 83%.
He gained 6 pounds and grew 1/2 an inch.
His liver functions have improved
and we do not have to do insulin right now.
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March 7, 2005
Travis had the best check up he has had in a long time. His lung functions
are back up to 83% AND he gained 3 lbs.
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Travis had some tests done today to check for diabetes.
The tests came back positive for diabetes.
This is a set back, but at least his lung functions and weight are up.
He has started insulin only at night.
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January 19, 2005
Travis went to Children's in Cinn. today for a check up. He was a little disappointed. After 3 weeks of iv meds, his lung function was only 75%. We have decided to remove the picc line/iv and try being more aggresive with his regular meds and his vest treatments at home. He will go back for a check up in 6 weeks.
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MERRY CHRISTMAS
Saturday, Dec. 25, 2004
Travis was able to go home yesterday afternoon in time for Christmas Eve. He will continue a 3 week dose of IV meds. and will go back to the hospital for a check up at the end of the 3 weeks. I will update then.
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Tuesday, December 21, 2004
Travis is doing ok, but he was admitted to the hospital yesterday for a round of IV medicines. If all goes well, it is our plan that he will go home Friday. We will finish the IV meds at home and while he is in California.
His lung functions were at 74% yesterday. His weight went down by a couple ounces this time as well. We are glad that it was not down farther considering he has been playing basketball the last 6 weeks.
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Wed., November 3, 2004
Travis' lung function has dropped a little this check-up. It was down to 75% today. We will have to do some extra vest treatments at home to try to help.
The good news is that he gained another pound. That makes 8 pounds since July! For him, that is incredible. For about a year and a half he had not gained weight inspite of the feeding tube in his stomach and the extra 1400 caleries a night. Now that seems to be changing. We really believe that the GSH-Curc caps with a dietary supplement are what made the difference. Maybe his lungs will start to do better soon too.
The other good news is that his iv/pic-line came out today. This means that Travis will be able to play on the Jr. High basketball team. With the iv, he could only watch. Now he gets to play.
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Wed., October 27, 2004
Travis went to Childrens Hospital for a check-up today. He hoped to get his pic-line/iv out, but we decided that it would be best to try another week of iv meds. His lung function has improved to 78%. That is pretty good, but not as high as we would like or as high as we think he could be. We would like to get him back up around 85% - 90%. His weight was up again by 2 more lbs. This is GREAT news.
He will return to Children's Hospital for another check-up next Wed., Nov. 3rd.
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Friday, October 15, 2004
Travis went home today. He will finish his 2 weeks of IV meds at home. His lung function was at 69% yesterday. That is up from 65% on Tuesday. We are planning to get his lung function back up above 80% by the 27th. Thanks for all the prayers and well wishes.
His weight also was up a little. They say he gained another 2 lbs.
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Tuesday, October 12, 2004
Travis was admitted to the hospital today because his PFT (pulmonary function test)was at 65%.
His weight was up by 3 lbs since July 11th. He now weighs 81.8 lbs. It must be all those vegatables he puts through his g-tube :)
or maybe it is the new GSH-Curc caps with a dietary supplement that he is taking now.
We need to get his lung functions back up to the 85% level. He will be going home this Friday and will continue the IV meds to complete 2 weeks worth of meds.
Travis went home from the hospital on IV meds on October 19th. After 3 weeks of iv meds, his lung functions were back up to 78%.
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